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Your Ideas! - Maybe one day

These ideas unfortunately can't happen right now, but maybe one day?

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    Myalgic Encephalomyelitis (M.E.)

    • Were working on it
    Help raise awareness of myalgic encephalopathy (ME) also known as chronic fatigue syndrome (CFS) or systemic exertion intolerance disease (SEID). A condition thought to affect 1 in 200 people with some statistics pointing towards 1 in 100 people. It is a long term condition that affects peoples ability to take part in every day activities, with varying degrees of severity. It is underfunded for research, and has a lot of negative stigma surrounding it. This needs to stop! Research into ME has less funding than headaches or balding. It can cause pain, tiredness, brain fog, dizziness, muscle weakness, light and sound sensitivity and many more symptoms. Often leaving the worst affected bed or house bound for months or even years. I know this because i have ME, i used to have it a lot worse and missed a lot of high school. It was only a few years ago that the 2nd death from ME was reported on the news, it isn't just tiredness as many people think. In 2011 the lancet published details of "research" into CFS and claimed that GET (graded exercise therapy) and CBT were the only treatments. It has now been taken to court and dismissed as it was found GET can be harmful to people with ME. This is why it needs awareness as many people and doctors wrongly believe you can exercise or positive think your way to health. I could write a lot more but i think this is already too long. I would like the SU to: Spread awareness about what ME/CFS is (with informed facts). People need to know what ME is and that it isn't just "yuppie flu" as the news papers dubbed it in i believe the 1950's. It would also be good to help raise money for ME charities as they get so little funding.
Georgina Westbrook
6:24pm on 11 Dec 19 I think this would better if it incorperated all invisible illnesses. There are many other conditions that cause the same issues.